Patient Advocacy

Partnering to support patients and caregivers

Vor Bio is actively involved with leading blood cancer advocacy groups, partnering in fundraising and sharing resources to help each other understand the patient journey and reinforce why our mission is so important.

We never lose sight of why we do this work—for the benefit of patients.

We work with many organizations who support the AML and blood cancer patient community. These range from blood cancer organizations like the Leukemia & Lymphoma Society to more broad-based cancer advocacy and support groups like the American Cancer Society.

Learn more from organizations that are working on behalf of patients with blood cancers

Patient Organizations:

To help remind us of the importance of the work we are doing at Vor Bio, we encourage employee participation in fund-raising and awareness events such as the Leukemia & Lymphoma Society’s Light the Night event in Boston.

Light The Night

Additionally, we regularly host talks with cancer patients and caregivers to further connect us to those we ultimately hope to cure.

Key Findings

Novel research identifies potential improvements to patient education and enrollment process for cell and gene therapy trials.

Patient Concerns

Patients share many concerns about CGT trials, including the fear of unknown risks of gene editing and caregiver requirements.

Insufficient Educational Materials

Nearly 90% of respondents indicated that educational content provided by sponsors for CGT trials were insufficient or non-existent, highlighting the need for more comprehensive and dynamic materials.

Increased Lab Monitoring Requirements

96% of respondents confirmed that CGT trials require more lab and monitoring compared to non-CGT trials, which could impact patients’ decision to enroll, but it largely depends on the benefits of the trial.

This research will inform Vor Bio’s communications approach for future clinical trials and how the Company can help support patients and partner institutions through the enrollment process.

View Poster Presentation

Patient advocacy in action

110 Dsc 3382 4.21.23 Genevieve De Manio Photography.com

We were lucky to welcome Brianna Burke during AML World Awareness Day 2022 to share her experience as a care partner to her step-father, an AML survivor who participated in 3 clinical trials, and underwent 2 transplants during treatment.